Are people with EDS skinnier?
People with EDS tend to have a "marfanoid" appearance (e.g., tall, skinny, long arms and legs, "spidery" fingers), but physical appearance and features in several types of EDS also have characteristics including short stature, large eyes, and the appearance of a small mouth and chin, due to a small palate.
Does obesity cause hypermobility?
Hypermobility (defined as ≥ to 4 joints) prevalence was 14% among obese, and 9% among HW subjects. With the stringent definition, (hypermobility ≥ 6 joints), the prevalence was 2% for both groups. (Table 3) Obesity was not associated with hypermobility (OR 1.23, CI 0.72-2.14, p = 0.3 in unadjusted and adjusted models.
Does diet affect Ehlers-Danlos syndrome?
Spriggs says nutrition can play a major role in supporting people with EDS. “Nutrition is key for health,” she says. “Therefore, it is an important factor for an individual managing EDS or any other health condition.
Do any celebrities have EDS?
For EDS Awareness Month, Chronic Pain Partners' Karina Sturm put together a list with popular fellow zebras, including Billie Eilish, Jameela Jamil, Yvie Oddly and many more.
Do people with EDS age slower?
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.
Are hypermobile people tall?
Like EDS, Marfan syndrome affects the body's connective tissues. The condition can cause hypermobile joints in addition to a number of typical characteristics, such as being tall and having abnormally long and slender limbs, fingers and toes. It can also cause potentially serious problems affecting the heart and eyes.
Can you have EDS without stretchy skin?
Skin and Connective Tissue: People with hEDS do NOT have to have profoundly stretchy skin! Most notably, in hEDS, the degree of softness, stretchiness, fragility, bruisability, and poor wound healing of skin differs from “normal” subjects but is mild in comparison to other types of EDS.
Does weight loss help EDS?
We have enough barriers when it comes to getting help with managing EDS, and those of us who are overweight appreciate that losing weight will help with some aspects of our condition, but the chronic pain we have in all of our muscles and joints is because of faulty collagen.
What are 7 signs you have hypermobility?
Reduce caffeine, alcohol, and nicotine intake
Caffeine, alcohol, and nicotine can all increase stress and affect sleep. Try to lower your consumption or use of these to improve your sleep and lower stress levels.
Is coffee bad for EDS?
Alcohol Intolerance and Food Sensitivities
For many with EDS or hypermobility disorders, certain substances like alcohol or specific foods can trigger adverse reactions. These aren't just minor discomforts; they can significantly disrupt daily life.
Can people with EDS drink alcohol?
Some studies have indicated that the autonomic nervous system is not functioning properly in patients with hypermobile EDS. Moreover, many patients experience chronic pain and fatigue, which may cause sleep disturbances or make it more difficult to get enough restful sleep.
Do people with EDS sleep more?
Billie Eilish has opened up about her diagnosis with hypermobility. The 21-year-old said she felt like her body was “gaslighting” her, while discussing the injuries she sustained as a teenager in a new cover story for Vogue.
What type of EDS does Billie Eilish have?
After her injury, Billie faced several lower body issues, and in the end, it was discovered that she had a condition called hypermobility.
Does Billie Eilish have hypermobility?
Much controversy surrounds the naming and diagnosis of hypermobile EDS. There is no diagnostic test for this condition and the genetic basis remains unknown. Moreover, joint hypermobility is a common finding in the general population (approximately 10%) and, within the same family, members might be variably affected.
Why is EDS controversial?
People with hypermobile EDS often experience pain from large breasts. Patients with hEDS often have aggravated symptoms of macromastia, or enlarged breasts.
Does EDS affect breasts?
Hair can be sparse on the scalp and body. It is usually light in colour, brittle, and slow to grow. It may be very fragile, curly, twisted and hard to manage.
How does EDS affect hair?
Recent research suggests that EDS may share strong links with autism. Case studies have previously been published identifying individuals who are both on the autism spectrum and have a diagnosis of EDS.
Is EDS linked to autism?
Double-jointed celebrities, pop singer Mylene Klass and singer/dancer Shakira, both suffered from anxiety, while singer Michael Jackson – famous for his popping and locking dance moves and bendy legs – is also believed to have been both hyper mobile and anxious.
What celebs are hypermobile?
In both populations, flexion of the hips and knees may result in skeletal deformities that may in turn affect posture (due to spinal, hip, and/or knee misalignment) and thus balance. Joint hypermobility may be symptomatic or asymptomatic and can result from not only the disease, but also from muscular imbalance.
Do people with EDS have bad posture?
Mutations in the gene SLC39A13 cause a very rare type of Ehlers-Danlos syndrome (EDS) that is characterized by short stature starting in early childhood and distinctive facial features, a study reports.
Can short people have EDS?
Conclusion. Women with EDS have a much higher rate of reproductive problems than would be expected to occur in a general population. Women with EDS suffer with a high incidence of infertility, spontaneous abortions, preterm labor, abnormal uterine bleeding, dysmenorrhea, and severe dyspareunia.
Can EDS cause infertility?
As a type of Ehlers-Danlos syndrome (EDS), vascular EDs (vEDS) is typified by a number of characteristic facial features (eg, large eyes, small chin, sunken cheeks, thin nose and lips, lobeless ears).
Does EDS affect facial features?
Direct-to-consumer genetic testing services (such as 23andMe and Ancestry.com) are not helpful for diagnosing any type of EDS or HSD.
Can 23 and me detect EDS?
It's not surprise that proper hydration and drinking water is critical for everyone's health. It is also widely known that those with EDS can also have issues with absorption so many people will hydrate with salt or use electrolyte tablets in water.
Why do people with EDS need salt?
By Jeff Kolb. 9-year-old Shea has discovered that swimming reduces his EDS pain. Aquatic activity is one of the best exercises for those with Ehlers-Danlos Syndrome.
Is swimming good for EDS?
People with EDS often have a lowered immune system. Part of this is probably related to being generally unwell for a long time, but there also seems to be a specific deficiency in IgG-3, which is one of the antibodies that fights infection.
Do people with EDS get sick easier?
Abnormalities of the nails are frequently seen in clinical practice although there has been no specific study of these in people with EDS. Difficulty with hand function, coupled with painful upper and lower limb joints, may also make it difficult for someone to reach and cut their toenails.
Does Ehlers Danlos affect nails?
"When you hear hoof beats behind you, don't expect to see a zebra." Medical students are given this quote as a way to let them know that they should look for a common diagnosis for the symptoms they are given instead of the possibility of it being a rare case. This is why people with EDS refer to themselves as Zebras.
Why do they call people with EDS zebras?
Hypermobile EDS is a genetic condition, but the cause of this condition isn't clear. If you have hypermobile EDS, common signs include unusual joint flexibility and slightly stretchy skin. The reason for this is because EDS is the result of defects in the type of collagen your body produces.
Am I hypermobile or do I have EDS?
Compared with healthy individuals, patients with EDS-HT are more likely to have POTS and lower sweat volume production.
Do people with EDS sweat?
Pain and other symptoms may make it difficult to get comfortable enough to fall asleep. People with EDS or HSD may also wake up during the night due to pain, joint instability, and other symptoms.
Why can't people with EDS sleep?
There are many different types of Ehlers-Danlos syndrome, but the most common signs and symptoms include: Overly flexible joints. Because the connective tissue that holds joints together is looser, your joints can move far past the normal range of motion. Joint pain and dislocations are common.
What are the red flags for Ehlers-Danlos syndrome?
Heat Intolerance tends to exacerbate the symptoms of POTS and EDS, making the sun-soaked months of summer a challenge to navigate.
Does hot weather make EDS worse?
In the United Kingdom, The Joint UK Blood Transfusion and Tissue Transplantation Services' professional advisory committee states that in terms of Ehlers-Danlos syndrome, they will not accept organ transplantation from anyone with a diagnosis of EDS. There is one exception which is pancreatic islet cells.
Can EDS donate organs?
Contact sports, such as soccer, football, and rugby, generally should be avoided. High-impact activities also should be avoided by most patients with EDS. These include running and basketball. Baseball, which requires a lot of running, also should be mostly avoided.
What sports should you avoid with EDS?
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.
Do people with EDS age slower?
Previous fracture was 10 times more common in EDS (p < 0.001), with 86.9% of patients reporting a total of 47 low impact fractures, compared with 8.7% of controls. CONCLUSION—This study has identified a tendency of EDS patients to fracture, have low bone mass and abnormal bone structure.
Does EDS make your bones weaker?
Individuals who suffer from Ehlers-Danlos Syndrome are young-looking, with velvety skin, a small face, and a thin nose, making them look younger as if they have never aged. This is especially seen in the case of the vascular type/ vascular Ehlers-Danlos Syndrome.
Does hypermobile EDS make you look younger?
5 Michael Jackson
We don't know for certain if he did in fact suffer from Ehlers Danlos or even hypermobility, but it is known that he experienced chronic pain and insomnia, both of which are common symptoms associated with Ehlers-Danlos Syndrome (EDS).
Did Michael Jackson have Ehlers-Danlos syndrome?
Actor Jameela Jamil has opened up about her struggles with Ehlers-Danlos Syndrome (EDS) in a candid video urging others to check their symptoms.
Who is the famous person with Ehlers-Danlos syndrome?
An NYITCOM Expert Explains What That Means. On January 29, actress Selma Blair shared a health update with her Instagram followers.
What actress has Ehlers-Danlos syndrome?
For the new study, UK researchers followed 54 men on an English Premier League soccer team over one season. Of the players, 18 (one third of the group) were deemed hypermobile.
Do any footballers have hypermobility?
Exceptional athletes such as Michael Phelps and Simone Biles have drawn extra attention to the subject of hypermobility in recent years, as their increased flexibility has helped them to perform seemingly superhuman physical feats.
What athletes have hypermobility?
People with hypermobile EDS often experience pain from large breasts. Patients with hEDS often have aggravated symptoms of macromastia, or enlarged breasts.
Does EDS affect breasts?
After her injury, Billie faced several lower body issues, and in the end, it was discovered that she had a condition called hypermobility.
Does Billie Eilish have hypermobility?
Women with Ehlers-Danlos syndrome are more likely to have heavy menstrual bleeding, pain with periods, and spotting.
Is Ehlers-Danlos worse with periods?
Over half of adolescents with EDS/HSD reported increased cramping, heavy bleeding, and irregular menstrual cycle. But only 10% sought out help for their symptoms. These symptoms can have a large affect in your day to day life, especially on top of EDS pain.
Does EDS affect menstrual cycle?
EDs can impact growth and puberty in CYP, but reports have conflicted over effect on height and permanence of growth impairment and pubertal delay.
Does EDS affect puberty?
Some studies have indicated that the autonomic nervous system is not functioning properly in patients with hypermobile EDS. Moreover, many patients experience chronic pain and fatigue, which may cause sleep disturbances or make it more difficult to get enough restful sleep.
Do people with EDS sleep more?
Hair can be sparse on the scalp and body. It is usually light in colour, brittle, and slow to grow. It may be very fragile, curly, twisted and hard to manage. Body hair at puberty and beard growth in males may not be affected.
Does EDS affect hair color?
While “brain fog” is not one of the most common symptoms of Ehlers-Danlos syndrome (EDS), many patients report experiencing this form of cognitive dysfunction, which can affect their ability to focus, learn, retain information, and maintain employment.
Does EDS affect intelligence?
Moreover, in a population-based matched cohort study in Sweden (n = 1,771), individuals with EDS were 5.6 times (95% CI: 4.2–7.4) more likely to have an ADHD diagnosis than those without EDS (18). Both autism and ADHD are commonly associated with the expression of tics.
Is EDS linked to ADHD?
A Swedish national registry study has recently shown that there is a positive association between EDS and ASD or ADHD, and similar results have been observed for HSD. Both ADHD and ASD are neurodevelopmental disorders,9,11 which accounts for their similarities as well as for the differences among them.
Can ADHD cause EDS?
Billie Eilish has opened up about her diagnosis with hypermobility. The 21-year-old said she felt like her body was “gaslighting” her, while discussing the injuries she sustained as a teenager in a new cover story for Vogue.
What type of EDS does Billie Eilish have?
Like EDS, Marfan syndrome affects the body's connective tissues. The condition can cause hypermobile joints in addition to a number of typical characteristics, such as being tall and having abnormally long and slender limbs, fingers and toes. It can also cause potentially serious problems affecting the heart and eyes.
Are hypermobile people tall?
Independent sample t-tests showed that hypermobile males were significantly weaker compared to non-hypermobile males with respect to elbow extensor strength for both right (p = 0.02) and left (p = 0.03) extremities (Table 2, unadjusted mean strength).
Are people with hypermobility weaker?
People with EDS tend to have a "marfanoid" appearance (e.g., tall, skinny, long arms and legs, "spidery" fingers), but physical appearance and features in several types of EDS also have characteristics including short stature, large eyes, and the appearance of a small mouth and chin, due to a small palate.
Can skinny people have EDS?
Many patients with EDS can benefit from low-impact exercises such as Pilates and Tai Chi, which help build core strength. Yoga can also be beneficial but poses must be done carefully as there is the risk of overextending joints in some positions. Swimming can be helpful as well for some EDS patients.
Can exercise make EDS worse?
As a type of Ehlers-Danlos syndrome (EDS), vascular EDs (vEDS) is typified by a number of characteristic facial features (eg, large eyes, small chin, sunken cheeks, thin nose and lips, lobeless ears).
Does EDS affect facial features?
The present work reviews the literature linking JHS/EDS-HT and eating problems. Two illustrative case reports, in which JHS/EDS-HT manifestations contribute to developing and maintaining disturbed eating behaviors and significant weight loss, are presented.
Does EDS cause weight loss?
A rare systemic disease characterized by congenital muscle hypotonia and/or muscle atrophy that improves with age, proximal joint contractures (knee, hip, elbow), and hypermobility of distal joints.
Does Ehlers-Danlos cause muscle wasting?
Patients with Ehlers-Danlos syndrome hypermobility type (EDS-HT) show considerably reduced lower extremity muscle strength and muscle strength endurance, which is reflected in a poorer functional performance. The muscle weakness may be due to muscle dysfunction rather than reduced muscle mass.
Does Ehlers-Danlos cause muscle loss?
On top of this, we know that people with EDS tend to have less muscle strength, which contributes to a vicious cycle. Weakness leads to inactivity (we avoid what is hard/uncomfortable), which leads to more weakness. Everyone loses strength and muscle size as they age (unless they do strength training).